... got off to a rousing start last night (yawn!). But one key issue--one attribute--was conspicuously absent: Ann Romney's multiple sclerosis.
In the
past, she and hubby Mitt have made a big deal about this. And lest you think I'm exaggerating the
importance of multiple sclerosis in this election, at the Democratic National
Convention in August, Michelle Obama made a big point about her father's
multiple sclerosis, too!
For a
while there it seemed everybody wanted to get on the MS bandwagon. But why? If
experience with multiple sclerosis makes one better suited to be president,
then I should run for emperor!
Disabling conditions like MS can be profoundly educative, to be sure. But they hardly make you special, or even presidential material.
Disabling conditions like MS can be profoundly educative, to be sure. But they hardly make you special, or even presidential material.
I was
born with spinal muscular atrophy, a congenital and progressive neuromuscular weakness. I've never walked or stood, never had much use
of my hands--though I was able to feed myself till about 20 years ago. Now my hand strength is completely gone.
Not that
I'm seeking pity. Nor do I want to
engage in a game of "who suffered more"—the Romneys, the Obamas, or
myself. What I am saying, however, is that I know the disability experience, and I
know it's not in and of itself grounds for leadership.
Yes, it
can make you humble. It can also make
you angry. It can make you give up, or
it can lead you to find an inner strength you never knew you had. Or it can do none of the above. There's really no predicting.
No
matter how we react to our own disabilities, people call us courageous and
inspiring. They mean well, but there's
nothing ennobling about having a disability.
None of us asked for it or had any special qualifications. It simply happened, and it can happen to
anyone.
You
never know how well or poorly you will cope when disability enters your
life. But somehow you will cope. We all do.
We don't honestly have any choice about it.
So are
the Romneys or Obamas better people for their encounters with a crippling
condition? Possibly. But one thing is clear: they didn't survive
it because of their grace or strength of character or gumption. They survived simply because they
endured. In short, they got lucky.
I
concede that having personal knowledge of a disability does lend a candidate
some common ground with the estimated 50 million Americans who are living with
a disability. That's as far as it goes,
though. It's just not that unusual a
thing.
In my
experience, the challenges associated with disability come in three varieties:
First, and arguably foremost, are the physical/medical struggles. We do have to fight with our bodies' limitations.
Second
are the societal barriers--the attitudes and obstacles that can isolate people
with disabilities from the mainstream.
Finally
and perhaps most importantly, there are economic issues. Disabilities are expensive. Even leaving out medical bills, a motorized
wheelchair can easily cost as much as a new car. A modified van starts at $50,000. And if you need full-time personal-attendant
care, you'd better have a spare hundred-grand on hand.
The
extent to which a disabling condition impacts one's life is directly related to
one's financial resources. If you do have
sufficient funds to procure the medical attention and assistive technology you
need, your disability can practically be reduced to a mere inconvenience. So I'm not really sure the Romneys
experienced disability the way poorer people do.
In fact,
the most recent census reported that a third of working-age adults with
disabilities are unemployed, far higher than any other minority group, and 27
percent live below the poverty line--double the proportion of adults without
disabilities.
Granted,
neither the Romneys nor the Obamas invented this idea of disability as a kind
of badge of courage. It harks back at
least to Franklin Roosevelt. Whenever
the polio-surviving president couldn't hide his inability to walk, he cleverly
manipulated his image to turn a presumed liability into an asset. His disability became a stand-in for the
Great Depression itself, and his ability to rise above it--albeit on
crutches--a symbol of his mettle and the nation's potential to overcome.
To this
day, people with disabilities are called "overcomers" a lot. I don't know how many times I've been praised
for "overcoming" my disability.
It's simply not true. I haven't
overcome it, Mrs. Obama's father didn't overcome his, and even Mrs.
Romney--whose MS seems to be in remission--hasn't overcome hers either. Be inspired if you like, but none of us
deserves credit for beating our conditions.
We can't. Rather, we learn to
live with them.
If a
candidate truly wants to embrace the disability experience, he or she must
understand that we don't want sympathy or blanket admiration. We want respect, opportunities, a place at
the table. Not because of paternalism or
pity, but because of an honest, realistic, un-sentimental understanding of what
living with a disability is really like.
And maybe it's not so different from what life is like for everybody
else.
###
I agree with most everything you say here and in your NYT Op-Ed, "Suicide By Choice? Not So Fast". But a major omission is this -- Life. Let's face it, if you or I were cute little unborn people today, we would not get a seat at the table because the odds are that we would not be allowed to draw a breath. The fundamental issue is not disability. It is life. We need to remember that. Blessings from NZ.
ReplyDelete